Publications

Specialty Pharmacy Quality Survey

The Gaucher Community Alliance  undertook a survey of its community to evaluate patient satisfaction with specialty pharmacies. The valuable insights garnered from the survey offer opportunities for enhancing patient satisfaction and provide input for decision-making for specialty pharmacies.

Gaucher patients have many daily struggles and the Gaucher Community Alliance believes that working with specialty pharmacies to improve services can alleviate frustration and stress related to receiving treatment. We hope that our specialty pharmacies will be interested in listening to patients and improving their care. Please read the complete survey results here.

Type 3 Survey and Poster

 

APHA Newborn Screening Abstract and Poster

 

WORLD Teens Abstract and Poster