CEO & Co-Founder
Aviva Rosenberg, JD is the co-founder and co-president of GCA. She is a health care attorney based in Pennsylvania and taught as an adjunct professor at several universities. Aviva was diagnosed with Gaucher disease at age 27, following 20 years of symptoms with no answers. Her son, Eli, also has Type I Gaucher disease. Aviva’s passion is educating about genetic diseases and screenings and talking about her personal journey with Gaucher disease, including the need to shorten patients’ diagnostic results. After yeas of dealing with insurance appeals and learning patients’ struggles with access and coverage, she was motivated to found Gaucher Community Alliance so that patients can share knowledge and experience to help others. She lives with her husband and three fabulous boys in Pittsburgh, Pennsylvania.
