Patients living with Gaucher disease often need financial assistance to help with the extremely high cost of treatment, ongoing medical care beyond medication, loss of income or reduced ability to work, travel and access costs, insurance and access inequities, and additional quality-of-life expenses.
The following organizations provide assistance for both public and private insurance holders. Please view the chart below for an overview of each organization and contact each for the details of how they can assist you.
Federal Poverty Level Calculator: https://www.needymeds.org/federal-poverty-level-calculator
| Program | PAN | TAF | NORD | Accessia |
|---|---|---|---|---|
| Contact info | (866) 316-7263 | (855) 845-3663, | (203) 296-3486, bit.ly/patient-assist |
(800) 366-7741 |
| Medical Qualifications | Currently receiving treatment for Gaucher disease | Diagnosed with Gaucher, on FDA-approved treatment | TBD | Diagnosed with Gaucher |
| Insurance qualifications | Have health insurance that covers your qualifying medication or product | Have prescription coverage for the prescribed treatment | TBD | Publicly OR privately insured OR uninsured |
| Financial Qualifications | Household income < 500% of FPL | Meet financial eligibility criteria based upon household income and size | TBD | Household income < 500% of FPL |
| Health Insurance Premiums | No | Yes | TBD | Yes |
| Prescription Drug | Yes, list of 8 drugs on website | Yes, list of 6 drugs on website | TBD | Yes, list of 11 drugs on website |
| Therapy Admin | No | Yes | TBD | Yes |
| Travel | No | Yes (treatment related) | TBD | Yes, $500 cap |
| Assessments | No | Genetic testing | TBD | Yes, Gaucher-related |
| Other | Medical expenses | |||
| Status (as of 5/24) | Open | Open | Open | Waitlist/at capacity |
| Annual Cap | $4,700 | None | TBD | $16,500 |
