Educational webinars provide accessible, up-to-date information to the Gaucher community. Individuals and families affected by Gaucher disease often face barriers to in-person learning opportunities, including travel costs, time constraints, and health considerations. Webinars eliminate many of these challenges by allowing participants to join from home while still gaining insights on cutting edge information from leading clinicians, researchers, industry partners and patient advocates. Our webinars create a consistent platform for sharing the latest developments in treatment, research, and disease management, helping community members stay informed and empowered in their care decisions.
In addition to education, webinars foster connection and engagement within the Gaucher community. Live sessions offer opportunities for participants to ask questions, share experiences, and hear directly from others who understand their journey, helping to reduce feelings of isolation. Recorded webinars further extend the impact by building a library of trusted resources that can be accessed at any time.
April 13, 7:30pm ET: Gaucher Gene Therapy: GALILEO-1/2/3 Clinical Trial Program Updates
February 25, 2026: Why Sex Matters in Gaucher Disease
November 18, 2025: Physical Therapy for Gaucher Disease
August 19, 2025: Beyond the Diagnosis: A Whole-Person Approach to Gaucher Wellness
May, 28, 2025: Gaucher Disease and Bone Health
April 9, 2025: Galileo 2 Gene Therapy Clinical Trial Updates
February 11, 2025: Genetic Screening for Gaucher
December, 2, 2024: Workplace Accommodations for Gaucher
October 30, 2024: Triage Health: Education on Insurance
June 17, 2024: Gene Therapy Clinical Trials Updates
May 15, 2024: What is a Port and is it Right for me?
April 2, 2024: What is a Specialty Pharmacy?
March 6, 2024: Pain Management for Gaucher Disease
February 20, 2024: Caregiver Resources
December 12, 2023: Our Heritage and Our Health
November 29, 2023: Type 1 Gaucher Gene Therapy Trials
August 24, 2023: When to Start Treatment for Gaucher Type 1 Children
May 8, 2023: Gene Therapy Clinical Trial – Galileo-1
May 1, 2023: Hip Replacement for Gaucher Disease
February 2, 2023: Financial Assistance Resources for the Gaucher Community
December 7, 2022: Experience the Freedom of Independence with Self-Infusion
August 9, 2022: Proceed Gene Therapy Clinical Trial for Type 1 Gaucher
April 26, 2022: Financial Planning for Gaucher Families
February 22, 2022: Family Planning
December 7, 2021: Full Circle Science
October 2, 2021: “This is Gaucher” Video Premiere Event
September 13, 2021: VPRIV Manufacturing Series
September 1, 2021: Cerezyme Manufacturing Series
August 25, 2021: Elelyso Manufacturing Series
May 24, 2021: Gaucher and Parkinson’s
February 24, 2021: Transitioning to Medicare with Gaucher
January 12, 2021: Gaucher Gene Therapy: A Personal Story
December 9, 2020: Selecting an Insurance Plan and Guidance
October 7, 2020: Ask the Expert: Is it Gaucher or Not?
August 18, 2020: Gaucher and COVID-19: Vaccine and Treatment Updates
May 19, 2020: Complementary Health for Living with Gaucher
March 11, 2020: Coronavirus (COVID-19) and Gaucher Disease
February 25, 2020: Gene Therapy Webinar: Ethics, Modalities and Upcoming Clinical Trials
November 13, 2019: Rare Disease Drug Pricing
Thank you to our sponsors for their support of our ongoing webinar programs.
