Webinars

Upcoming Webinars

GAUCHER PAIN MANAGEMENT: DIFFERENT METHODS, DIFFERENT COUNTRIES

Learn how doctors approach pain management for Gaucher and other chronic diseases and various treatment options. Learn from pain specialists from the United States and Serbia. 

March 6, 2024, 8am-9am ET

Register here

Past Webinars

February 20, 2024: Caregiver Resources

December 12, 2023: Our Heritage and Our Health

November 29, 2023: Type 1 Gaucher Gene Therapy Trials

August 24, 2023: When to Start Treatment for Gaucher Type 1 Children

May 8, 2023: Gene Therapy Clinical Trial – Galileo-1

May 1, 2023: Hip Replacement for Gaucher Disease

February 2, 2023: Financial Assistance Resources for the Gaucher Community

December 7, 2022: Experience the Freedom of Independence with Self-Infusion

August 9, 2022: Proceed Gene Therapy Clinical Trial for Type 1 Gaucher

April 26, 2022: Financial Planning for Gaucher Families

February 22, 2022: Family Planning

December 7, 2021: Full Circle Science

October 2, 2021: “This is Gaucher” Video Premiere Event

September 13, 2021: VPRIV Manufacturing Series

September 1, 2021: Cerezyme Manufacturing Series

August 25, 2021: Elelyso Manufacturing Series

May 24, 2021: Gaucher and Parkinson’s

February 24, 2021: Transitioning to Medicare with Gaucher

January 12, 2021: Gaucher Gene Therapy: A Personal Story

December 9, 2020: Selecting an Insurance Plan and Guidance

October 7, 2020: Ask the Expert: Is it Gaucher or Not?

August 18, 2020: Gaucher and COVID-19: Vaccine and Treatment Updates

May 19, 2020: Complementary Health for Living with Gaucher

March 11, 2020: Coronavirus (COVID-19) and Gaucher Disease

February 25, 2020: Gene Therapy Webinar: Ethics, Modalities and Upcoming Clinical Trials

November 13, 2019: Rare Disease Drug Pricing

Thank you to our sponsors for their support of our ongoing webinar programs.

Takeda
Sanofi
Pfizer