Webinars

Upcoming Webinars

Stay tuned for Fall 2024 Schedule

Past Webinars

May 15, 2024: What is a Port and is it Right for me?

April 2, 2024: What is a Specialty Pharmacy?

March 6, 2024: Pain Management for Gaucher Disease

February 20, 2024: Caregiver Resources

December 12, 2023: Our Heritage and Our Health

November 29, 2023: Type 1 Gaucher Gene Therapy Trials

August 24, 2023: When to Start Treatment for Gaucher Type 1 Children

May 8, 2023: Gene Therapy Clinical Trial – Galileo-1

May 1, 2023: Hip Replacement for Gaucher Disease

February 2, 2023: Financial Assistance Resources for the Gaucher Community

December 7, 2022: Experience the Freedom of Independence with Self-Infusion

August 9, 2022: Proceed Gene Therapy Clinical Trial for Type 1 Gaucher

April 26, 2022: Financial Planning for Gaucher Families

February 22, 2022: Family Planning

December 7, 2021: Full Circle Science

October 2, 2021: “This is Gaucher” Video Premiere Event

September 13, 2021: VPRIV Manufacturing Series

September 1, 2021: Cerezyme Manufacturing Series

August 25, 2021: Elelyso Manufacturing Series

May 24, 2021: Gaucher and Parkinson’s

February 24, 2021: Transitioning to Medicare with Gaucher

January 12, 2021: Gaucher Gene Therapy: A Personal Story

December 9, 2020: Selecting an Insurance Plan and Guidance

October 7, 2020: Ask the Expert: Is it Gaucher or Not?

August 18, 2020: Gaucher and COVID-19: Vaccine and Treatment Updates

May 19, 2020: Complementary Health for Living with Gaucher

March 11, 2020: Coronavirus (COVID-19) and Gaucher Disease

February 25, 2020: Gene Therapy Webinar: Ethics, Modalities and Upcoming Clinical Trials

November 13, 2019: Rare Disease Drug Pricing

Thank you to our sponsors for their support of our ongoing webinar programs.

Takeda
Sanofi
Pfizer