The following organizations provide assistance for both public and private insurance holders. Please contact each for the details of how they can assist and view the chart below for a quick overview.
Federal Poverty Level Calculator: https://www.needymeds.org/federal-poverty-level-calculator
| Program | PAN | TAF | NORD | Accessia |
|---|---|---|---|---|
| Contact info | (866) 316-7263 | (855) 845-3663, help@tafcares.org | (203) 296-3486, gaucherdiseases@rarediseases.org | (800) 366-7741, foundation@accessiahealth.org |
| Medical Qualifications | Currently receiving treatment for Gaucher disease | Diagnosed with Gaucher, on FDA-approved treatment | TBD | Diagnosed with Gaucher |
| Insurance qualifications | Have health insurance that covers your qualifying medication or product | Have prescription coverage for the prescribed treatment | TBD | Publicly OR privately insured OR uninsured |
| Financial Qualifications | Household income < 500% of FPL | Meet financial eligibility criteria based upon household income and size | TBD | Household income < 500% of FPL |
| Health Insurance Premiums | No | Yes | TBD | Yes |
| Prescription Drug | Yes, list of 8 drugs on website | Yes, list of 6 drugs on website | TBD | Yes, list of 11 drugs on website |
| Therapy Admin | No | Yes | TBD | Yes |
| Travel | No | Yes (treatment related) | TBD | Yes, $500 cap |
| Assessments | No | Genetic testing | TBD | Yes, Gaucher-related |
| Other | Medical expenses | |||
| Status (as of 5/24) | Open | Open | Not yet accepting applications for current year | Waitlist/at capacity |
| Annual Cap | $4,700 | None | TBD | $16,500 |