Events

2023 Patient and Family Regional Meetings

Meeting #1

Where: Hilton Los Angeles, Culver City CA         

When: Sunday, May 21, 2023    

Meeting #2

Where: The Legacy Club at Woodcrest, Cherry Hill, NJ

When: Sunday, October 15, 2023

Past Events

  • “This is Gaucher” Video Production- Watch and Read more here
  • Show Us Your Stripes – Read more here
  • Gaucher Community Wheels Photos – Read more here
  • 2022 Gaucher Patient and Family Conference – See photos and presentations here

EVENTS

Gaucher Community Wheels for October Gaucher Awareness Month

We’ve figured out a great social distancing way to celebrate Gaucher Awareness Month this October with Gaucher Community Wheels. All in the comfort of your own car!
Designed by Felicia Hemminger

At least one from every state and province! 

Let’s rally and get everyone involved. We’ve sent Be Aware of Rare car magnets to everyone in our GCA database. If you have received your magnet, display the magnet on your car for the month of October. Then show us that you’ve done so. Submit a photo of the magnet on your car with the state of the license plate to show your support for Gaucher Awareness Month, and we will post the photos on our website and social media. Our goal is to have at least one photo from every state in the US and every province in Canada. Let’s show the world that although we’re rare, we are everywhere!

Don’t have a car? No worries. Any fridge will do with a sign of your state.

Haven’t received a car magnet? Sign up on our website here, and we’ll send one out so you can join our community in celebrating Gaucher awareness. 

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Generously sponsored by our Platinum Sponsor Prevail Therapeutics
and our Gold Sponsors AVROBIO, Orphazyme, Pfizer and Takeda.

 

PAST EVENTS

Show Us Your Stripes

Gene Therapy 2.25.20 Webinar