Photo credits: Glenn Katz
The Gaucher Community Alliance held its first Gaucher Patient and Family Conference on October 23 – 25 in Minneapolis, MN. The conference was designed to connect, educate, and empower Gaucher patients and their families by providing information and tools for them to best manage their disease and live fuller life. It was a wonderful opportunity for patients and family members to connect with and learn from their peers, the medical and research community, and other organizations and companies supporting Gaucher disease. Click on the links below to watch some of the innovative programming.
Playing on multiple screens throughout the conference, we offered a wonderful loop of the history of Gaucher research, treatments and support organized by former board member Nancy Masters. The slide presentation includes many who were involved in making the world a better place for people and families with Gaucher. This is an evolving collection of history, and if you have any information you’d like us to include, please contact us at info@gauchercommunity.org and send it our way.
See the Fascinating Facts About Gaucher Disease here!