The Gaucher Community Alliance is pleased to announce its first Gaucher Patient and Family Conference, a conference designed to connect, educate, and empower Gaucher patients and their families by providing information and tools for them to best manage their disease and live a fuller life by connecting with and learning from their peers. Join us in Minneapolis to truly connect, explore, get to know one another and learn from each other.
Is designed for Patients and Families Only. Over a dozen workshops will be offered led by the patient community who are experts in their fields and have the experience to share their knowledge and provide tools. Subjects will include emotions and depression; art, music, and physical therapies; health and life insurance guidance; story sharing circles; neuronopathic management; diet and exercise; stress management; and more.
Industry sponsors, Gaucher providers and clinicians, and researchers will be joining patients and families to discuss Gaucher research on current and potential treatments and present other patient programs available to patients and families.