Registration – LA Patient Meeting

Gaucher Community Alliance

Los Angeles Patient Meeting

Hilton Los Angeles Culver City

6161 West Centinela Avenue, Culver City

California, 90230

Room: Pacific A, 3rd Floor

Registration Form

Please join us at the Los Angeles Patient and Family Meeting. There will be interactive speakers, medical experts and exciting programming. Plus, plenty of time to catch up with other patients and families and exchange information. The entire family is welcome.

Agenda

11:00 am:  Arrive

11:30 am – 11:45 am

Guided Meditation and Breathing Exercise Barbara Mastro, Gaucher Patient

11:45 am

Buffet Lunch Opens

12:00 pm – 12:30 pm
Beyond ERT and SRT: An Update on Novel Therapeutic Options for Type I Gaucher Disease, Dr. Jeremy Lorber, Cedars Sinai Tower Hematology Oncology

12:30 pm – 1:15 pm

Gaucher Medical Expert Q&A Panel

Dr. Barry Rosenbloom, Cedars Sinai Tower Hematology Oncology

Dr. Jeremy Lorber, Cedars Sinai Tower Hematology Oncology

1:15 – 1:30 pm: Break

1:30 – 1:45

Personal Story with Gaucher and Storytelling, Adam Rose, Actor and Gaucher Patient

1:45 pm – 3:00 pm

What Gaucher Means to Me: Building Your Story Beads, Dr. Suraiya Rahman, Pala Medicine

3:00 pm – 3:15 pm

Gaucher Patient Advocacy Efforts, Aviva Rosenberg and Cyndi Frank, Co-Presidents, GCA

3:15 – 4:00

Social Time, Get to know your Gaucher neighbors, connect, share contact information, visit sponsor tables

"*" indicates required fields

Below please provide the names (and ages, if under 18) of all attendees in your group/family and meal attendance. Please note any dietary needs or restrictions (i.e. allergies, kosher, vegetarian, etc.) in the space provided.

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Safety Precautions: For the safety of all attendees, including our children and immunocompromised members of our community, we ask that you and your eligible family members be completely vaccinated and boosted when you attend the conference.

Photo Release: GCA will take photos of attendees throughout the conference. These photos are for GCA use only and may appear on the GCA website, in our quarterly newsletter, in future conference brochures, on social media outlets, or in other future GCA promotional material. By virtue of your attendance, you agree to the usage of your likeness in such media.

Waiver of Liability and Indemnity Related to COVID-19 Warning

GAUCHER COMMUNITY ALLIANCE has taken enhanced health and safety measures—for you, other attendees, exhibitors, and staff. You must follow all posted instructions while visiting GAUCHER COMMUNITY ALLIANCE events and activities. An inherent risk of exposure to COVID-19 exists in any public place where people are present. COVID-19 is an extremely contagious disease that can lead to severe illness and death. I acknowledge that participation in GAUCHER COMMUNITY ALLIANCE events and activities brings some risk and I do hereby assume responsibility for my own well-being. I will follow all Centers for Disease Control and Prevention (CDC) guidance, and all posted instructions while visiting GAUCHER COMMUNITY ALLIANCE events and activities. I understand, agree and hereby consent that my failure or disregard to follow all protocols in effect and required by GAUCHER COMMUNITY ALLIANCE, CDC, the venue provider and governing authorities during my attendance at the Gaucher Community Patient & Family Conference is hereby sufficient grounds to be excluded from attending the Gaucher Community Patient & Family Conference, and I hereby consent in advance to leave and exit the event, without protest or refund, upon request by GAUCHER COMMUNITY ALLIANCE or an event authority due to my refusal to follow said protocols.

Assumption of Risk

I have read and understand the above warning concerning COVID-19. I hereby choose to accept the risk of contracting COVID-19 for myself in order to attend a GAUCHER COMMUNITY ALLIANCE conference and enter into the conference premises. The conference is of such value to me that I accept the risk of being exposed to, contracting, and/or spreading COVID-19 in order to attend in person.

Waiver, Release, and Indemnification

As a condition of my participation in this meeting or event, I, do hereby expressly waive any rights against and release and hold harmless GAUCHER COMMUNITY ALLIANCE and any of its officers, employees, affiliates, contractors, agents, heirs, legal successors, and assigns (collectively “GAUCHER COMMUNITY ALLIANCE'') from and against any and all claims, suits, demands, losses, damages, expenses, or liability of whatever kind or nature (collectively “liability”), under any theory of law or equity, that may arise during or as a result of my presence at the premises, including but not limited to any such liability related to or arising out of illness, injury, or death associated with infection of COVID-19 or complications, symptoms, or other effects resulting from contracting COVID-19. I shall defend, indemnify, and hold harmless GAUCHER COMMUNITY ALLIANCE and all other Releases against any and all losses, damages, liabilities, deficiencies, claims, actions, judgments, settlements, interest, awards, penalties, fines, costs, or expenses of whatever kind, including attorney fees, fees and the costs of enforcing any right to indemnification under this Agreement, and the cost of pursuing any insurance providers, arising out or resulting from any claim of a third party related to the Activities.

I UNDERSTAND, AND IT IS MY EXPRESS INTENT, THAT THIS RELEASE AND WAIVER OF LIABILITY RELEASES GAUCHER COMMUNITY ALLIANCE FROM SUCH LIABILITY EVEN IF SUCH LIABILITY RESULTS FROM OR IS CAUSED BY THE SOLE OR CONTRIBUTORY OR ACTIVE OR PASSIVE NEGLIGENCE, STRICT LIABILITY, OR OTHER LEGAL FAULT OF GAUCHER COMMUNITY ALLIANCE OR ANY THIRD PARTY. I ALSO UNDERSTAND AND AGREE THAT GAUCHER COMMUNITY ALLIANCE DOES NOT ASSUME ANY RESPONSIBILITY OR OBLIGATION TO PROVIDE FINANCIAL OR OTHER ASSISTANCE, INCLUDING BUT NOT LIMITED TO MEDICAL, HEALTH, OR DISABILITY ASSISTANCE IN THE EVENT OF INJURY OR ILLNESS. IN THE EVENT THAT I OR MY FAMILY MEMBER IS INJURED, BECOMES ILL, OR SUFFERS COMPLICATIONS DUE TO COVID-19, ALLEGEDLY AS A RESULT OF MY PARTICIPATION IN A GAUCHER COMMUNITY ALLIANCE EVENT, I AGREE TO RELEASE AND HOLD HARMLESS GAUCHER COMMUNITY ALLIANCE IN THE SAME MANNER AND TO THE SAME EXTENT AS SET FORTH ABOVE.

Choice of Law and Venue

I understand and agree that the law of the State of California will apply to this contract and the Venue for any legal action.

BY COMPLETING THE REGISTRATION FOR THIS EVENT, I HAVE CAREFULLY READ AND FULLY UNDERSTAND ALL PROVISIONS OF THIS RELEASE AND FREELY AND KNOWINGLY ASSUME THE RISK AND WAIVE MY RIGHTS CONCERNING LIABILITY AS DESCRIBED ABOVE.

Do you agree to the waiver above?*
Have you received your COVID-19 Vaccination and booster?*