2024 Patient & Family Conference

Please join us in Pittsburgh, PA for our second Patient Conference! Conference Registration open until August 1, 2024.

DoubleTree by Hilton Hotel & Suites Pittsburgh Downtown
1 Bigelow Square
Pittsburgh, PA 15219

Sunday, September 15, 2024  – Patients and Families Only

  • 2 – 6 PM: Patient and caregiver video production.
  • 3 – 9 PM: Registration open.
  • 6 – 9 PM: Welcome reception for patients and families to meet including a casual buffet dinner and performance by Pittsburgh Playback Improv.

Monday, September 16, 2024  — Workshops for patients and families Only. Dinner and evening program is open to all attendees.

  • 9 AM – 4 PM: All day breakout workshops for patient community only; Lunch will be provided.
  • 3 PM – 6 PM: Industry sponsor and organization booths open.
  • 6:15 PM – 9 PM: Cocktail hour, dinner and program for patients, families, industry sponsors, providers and researchers; Keynote program with Dr. Deborah Gilboa.

Tuesday, September 17, 2024 – Open to ALL Guests

  • 8 AM – 4 PM: Industry sponsor and provider presentations on research, prospective treatments, and trials; Lunch will be provided.
  • 8 AM – 4 PM: Industry sponsor and organization booths open.
  • 6 – 8 PM: Closing dinner.

Full agenda and hotel details to follow shortly.

Scholarships are available to attend the conference in the amount of $900 for one person or $1,200 for both patient and caregiver. Priority for scholarships are given to workshop facilitators and are then awarded on a first come, first served basis and will be paid at the conference. Please click here for a scholarship application. Note: scholarship applications will not be reviewed unless a registration form has been completed. Application deadline is July 15, 2024.

Many thanks to our industry sponsors for supporting the Gaucher Community Patient & Family Conference!

Platinum Sponsor

Gold Sponsors