Day 1 of the Gaucher Patient & Family Conference! Thank you to the Pittsburgh Playback Theater for an amazing opening program that truly showcased so many feelings of our patients and families here this week. We had a wonderful dinner with lots of time to connect with one another, and finished the night off with some bonding and games for our teens and young adults.
A busy, informative, and fun day 2 at the Gaucher Patient and Family Conference! Thank you to workshop leaders, speakers, and attendees for such a wonderful day, we are so grateful for your hard work and participation. We learned about Gaucher bone imaging, discussed how to be a Gaucher parent, practiced strategies and skills for physical and mental health, and so much more.
The final day of our Gaucher Patient & Family Conference was definitely a success! We learned from our Gaucher medical experts, industry sponsors, community representatives and so many more. Thank you to everyone who attended and we can’t wait to see you again at our next Patient & Family Conference!
