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Gaucher Teen and Young Adult Advocacy Trip

Teens and young adults, join us in Washington, DC!

Attendees under 18 must be accompanied by a parent or guardian. This trip is meant to encourage advocacy within our young Gaucher population to make necessary steps towards policy changes in legislation that affect our Gaucher and rare disease communities.

Registration

Retreat Schedule:

Tuesday, June 24th, 2025 – Arrivals, training session, dinner

  • 3:00 pm: Arrivals and check-ins to Homewood Suites Navy Yard
  • 4:00-6:00 pm: Legislative training sessions in the conference room of the hotel
  • 6:30-8:30 pm: Dinner at Circa Navy Yard

Wednesday, June 25th, 2025 — Meetings on Capitol Hill with lunch provided, dinner and bowling at Bowlero

  • 9:30 am – 4:30 pm: All day meetings on Capitol Hill with senators and representatives; Lunch will be provided.
  • 4:45 pm: Group photo on Capitol Hill
  • 6:30-8:30 pm: Bowling and pizza party dinner at Bowlero, Arlington.

Thursday, June 26, 2025 – Travels home

  • 11:00 am: Hotel checkout and travels home
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