Attendees under 18 must be accompanied by a parent or guardian. This trip is meant to encourage advocacy within our Gaucher population to make necessary steps towards policy changes that affect our Gaucher and rare disease communities.
Registration
Wednesday, June 24th, 2026 – Arrivals, training session, dinner
Thursday, June 25th, 2026 — Meetings on Capitol Hill with lunch provided, dinner and activity (TBD!)
Friday, June 26, 2026 – Travels home
FAQs
Hotel Booking