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UID:5@gauchercommunity.org
DTSTART;TZID=America/New_York:20260618T190000
DTEND;TZID=America/New_York:20260618T200000
DTSTAMP:20260521T145227Z
URL:https://www.gauchercommunity.org/events/webinar-updates-from-the-vengl
 ustat-clinical-trial-for-gd3-7pm-et-4pm-pt/
SUMMARY:Webinar: Updates From The Venglustat Clinical Trial For GD3 (7pm ET
  / 4pm PT)
DESCRIPTION:Register here.\n\nJoin the Gaucher Community Alliance for a web
 inar to learn about the data from the venglustat clinical trial in type 3 
 Gaucher patients. During this session\, Dr. Pramod Mistry will provide an 
 overview of the design and key findings from a Phase 3 clinical study\, wh
 ich evaluated an investigational oral treatment called venglustat in adult
 s and teenagers living with type 3 Gaucher disease. This webinar is intend
 ed to help patients and families better understand ongoing research effort
 s in the type 3 neuronopathic community.\n\nThis educational program is sp
 onsored by Sanofi. Venglustat is an investigational treatment and has not 
 been approved by the FDA or any other regulatory authority. The informatio
 n presented is not intended as medical advice. Please consult your physici
 an regarding your individual medical condition and treatment options.\n\n*
 Closed caption translation services available.\n\nPresented By Pramod Mist
 ry\, MBBS\, PhD\, MA\, MD\n\nProfessor of Medicine (Digestive Diseases) an
 d of Pediatrics (Gastroenterology)\n\nProfessor of Cellular &amp\; Molecul
 ar Physiology\n\nDirector of Yale Lysosomal Disease Center and Gaucher Dis
 ease Treatment Center\n\nDr. Pramod Mistry is a physician-scientist and Pr
 ofessor of Medicine at Yale School of Medicine who directs the Yale Gauche
 r Center for Lysosomal Diseases. For over 30 years\, he has dedicated his 
 career to caring for and researching rare inherited diseases\, particularl
 y Gaucher disease. Dr. Mistry has helped develop and test new treatments t
 hat have dramatically improved patients' lives and leads international reg
 istries tracking thousands of patients to understand disease progression a
 nd treatment response. He is ranked among the top three world experts in G
 aucher disease globally and has discovered important connections between r
 are diseases and more common conditions like Parkinson's disease and cance
 r. Through his work\, Dr. Mistry has ensured that patients around the worl
 d\, including children in underserved regions\, can access life-changing t
 herapies. His research bridges laboratory science with patient care\, and 
 he has trained the next generation of physicians while publishing over 100
  influential research papers that advance our understanding of rare diseas
 es.
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TZID:America/New_York
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DTSTART:20260308T030000
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